~Mr. Michael Jackson's Innocence Bracelets~
Supporting MJJ's Musical Legacy Since 2004.
From A Neurologist:
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Subject: Do You Know...
Medication switches pose high risk
As a neurologist specialized in treating patients with epilepsy, I have seen firsthand the struggle patients face when trying to find the correct medication to regulate seizures. The life-long challenge of regulating this disorder is daunt ing enough without having to worry that a pharmacy may substitute their medication without their knowledge. It is vital to re quire the informed consent of both physician and patient before substituting an epilepsy patient's anticonvulsant medication.
Epilepsy and seizures affect more than 129,000 individuals in New Jersey, and 200,000 new cases of epilepsy are diagnosed in America each year. Epilepsy is a neurological condition characterized by recurring seizures that can only be controlled by medication in the majority of patients. However, even small variations in composi tion between medications can cause toxic effects and/or breakthrough seizures when taken by patients with epilepsy. Patients who experience even one breakthrough seizure can lose their job, their driver's license as well as their life. Patients who experience a series of seizures without recovery in between face a life-threatening situation and significant medical costs. With epilepsy medications, it can't be "close enough" -- it has to be right or it's right to the emergency room.
You would think that such sensitive and life-affecting medication would require that patients and their physicians be involved in the decision to alter treatment. However, there is no law in the state of New Jersey to require this, which leaves our state's residents with epilepsy open to the possibility of devastating medical effects.
Fortunately, legislation has been introduced to provide such protection. The Patient Protection Bill (S2071 and A3029) re quires the prior notification of patients and their prescribing physician before substitutions of anticonvulsant medications used for treating epilepsy are made.
As a doctor, I support provid ing each patient with the best medical care and promoting open communication among pharmacists, doctors and patients. We must ensure that patients with epilepsy have the peace of mind of knowing that they can live without the danger of unexpected sei zures due to an unauthorized change in their medication. I urge our legislators to support the Patient Protection Bill -- because one breakthrough seizure, one in jury, one lost life is one too many.
-- DR. SETH M. KELLER, Lumberton
The writer is a physician with Neurology Consultants of Burlington County.
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Update 5.25.09
I have arrived in Canada. I cycled west across Florida. Arrived to a wonderful ovation at The Ritz-Carlton in Naples. I went north past Tampa to Tallahassee. There I met with Lt. Governor Kottkamp. Afterward I spoke with Sen. Dan Gelber. I crossed the state line into Georgia. North of Atlanta I was met in the State by Shirley Mitchell from fabulous over 50. She came with agent Cruiser Small. They drove from Alabama to meet with me. North from there the mountains awaited. I rode up the mountains of North Carolina. Was hit with hail riding on the Blue Ridge Parkway. I went into Virginia. There I was greeted by the Epilepsy Therapy Project in Northern Virginia. (www.epilepsytherapyproject.com) Into Maryland and Pennsylvania. I went into Philadelphia. In NJ (http://www.efnj.com/) tried to meet but timing prevented it from taking place. Then NY. Into the big apple I met with Dr. Orrin Devinsky of (NYU Medical Center | NYU School of Medicine). Over the George Washington Bridge and on the 9W I made my way toward the hills of up State NY. Today by ferry I entered Canada. I was greeted by (http://www.epilepsykingston.org/) I am raising epilepsy awareness one person and one mile at a time. See more of my efforts @ www.destinymaker.org.
Below is a news clip.
DestinyMaker April Update
Hello DestinyMaker's,
With a April 27th start on this year's 4th Annual Bike ride for Epilepsy there is still much to do.
First though an update on DestinyMaker. After years of cycling Thousands of miles and watching countless amount of my son's seizures the dream of DestinyMaker becoming a Charitable Organization has become a reality. It is with great pride that I am able to announce this exciting news. DestinyMaker will now be able to offer a Tax Deductible Receipt on all donations given. This is an historic day for all who have worked with or supported destinymaker.
Please go to www.destinymaker.org for more information on this year's bike ride. The route has been posted. The mission of destinymaker will be found there as well. You can also join our facebook group. There is a link provided. There are now just under 2000 members. The destinymaker web site has been viewed from 68 countries and close to 2000 cities. I also keep a blog. It can be read at the web site. Currently about 250-300 people read blog each week.
There are many ways to help on this year's ride for awareness. Not all by making a donation.
1. I need the media. If you are in and can do a story it will help the many parents just like me. Do you know of someone who might be interested in the story? Send them to the web site.
2. After checking route do you live near where I will be biking. Come join me for a few miles!!
3. Know of a Hotel or Restaurant that could offer a meal or room? Let me know!
DestinyMaker will be adding a place for Parents to tell the story of their experiences with a child who has Epilepsy. If you wish your story to be told contact us.
It seems as if I just finished and recovered from last year's 8100 mile ride. While this year's will be slightly over 7000 it no less presents the same difficulties and dangers. I ride for you. Every mile I pedal I do so for the many families just like mine. I cycle for the parents who have lost a child to SUDEP. For every person who has epilepsy. I ride for Nyle and the entire epilepsy community.
I wrote to the National Epilepsy Foundation requesting help to walk from my home in South Florida to next year's 2010 National Walk in Washington DC. I would walk the 1200 or so miles and arrive on the day it begins. I would need help to accomplish such an endeavor. I was sadden not being able to go to this year's walk. So I decided to offer them this opportunity to help me obtain the goal.
Recently I've noticed more stories, events and opportunities for those in Epilepsy. This is great at a time when a cure is needed more than ever. I need your help to help others.
I am not a large organization with small dreams. I am one man with one big dream. To raise awareness that could help inspire someone to find a cure.
Contact me 305-528-7854 cell
Glenn A. Fenster
3.14.09 March Update
On April 27th, 2009 Glenn Fenster, Founder of DestinyMaker will embark on a 6000 mile bicycle journey from Aventura, Florida back to Aventura, Florida. Along the way Glenn will ride through and possibly stay in cities such as...
Tallahassee
Atlanta
Asheville
Philadelphia
NYC
Bangor
Halifax, Canada
Toronto, Canada
Chicago
Orlando
Miami
His inspiration and reason for this ambitious undertaking is his 14 year-old son, Nyle, who has suffered from acute epilepsy since he was just two years old. Glenn is riding to show his son that no matter what the disability, everyone has the capacity to reach for their dreams. He does not ride just for his son, but for other kids and adults living with epilepsy.
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, with the support of the Epilepsy Foundation of Florida. In 2007 Glenn's ride from Alaska added another 2500 miles to his journey along with the challenges of the ‘northern climate’, which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, “This trip pales in comparison to the courage my son and others exhibit each day”. In 2008 Glenn's 3rd annual ride was 8100 miles from Denver to Miami. (the long way).
As some of you may know, I will begin in late April my 4th annual North America bike ride for epilepsy awareness. This 5800 mile ride will take me from my home in South Florida to Maine. Then into Canada toward Halifax in hopes of meeting a little girl named Cassidy who has asked the world to wear purple on March 26th. After I will make my way west toward Chicago to meet up with Idea League an Organization that helps those with Dravet's Syndrome, a sever form of Epilepsy. On my way I will stop in cities large and small. I will go contact every newspaper and TV station along the way. This will be my first time starting from Florida. My route though not clearly defined as of yet is posted @ www.destinymaker.org.
Tallahassee
Atlanta
Asheville
Philadelphia
NYC
Bangor
Halifax, Canada
Toronto, Canada
Chicago
Orlando
Miami
His inspiration and reason for this ambitious undertaking is his 14 year-old son, Nyle, who has suffered from acute epilepsy since he was just two years old. Glenn is riding to show his son that no matter what the disability, everyone has the capacity to reach for their dreams. He does not ride just for his son, but for other kids and adults living with epilepsy.
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, with the support of the Epilepsy Foundation of Florida. In 2007 Glenn's ride from Alaska added another 2500 miles to his journey along with the challenges of the ‘northern climate’, which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, “This trip pales in comparison to the courage my son and others exhibit each day”. In 2008 Glenn's 3rd annual ride was 8100 miles from Denver to Miami. (the long way).
As some of you may know, I will begin in late April my 4th annual North America bike ride for epilepsy awareness. This 5800 mile ride will take me from my home in South Florida to Maine. Then into Canada toward Halifax in hopes of meeting a little girl named Cassidy who has asked the world to wear purple on March 26th. After I will make my way west toward Chicago to meet up with Idea League an Organization that helps those with Dravet's Syndrome, a sever form of Epilepsy. On my way I will stop in cities large and small. I will go contact every newspaper and TV station along the way. This will be my first time starting from Florida. My route though not clearly defined as of yet is posted @ www.destinymaker.org.
Contact me 305-528-7854 cell
Glenn A. Fenster
February Update
Here is an update on DestinyMaker's www.destinymaker.org upcoming events.
1. 02/13/09 24 hour Relay Runathon I will run/walk/crawl 100 miles Aventura Fl 8am
2. FEB 501c3 not for profit status will be filed with State of Florida this month
3. FEB Appearance on Growing Bolder's radio show TBA
4. 03/01/09 Guest Speaker @ Mystic Point Association 10am
5. 03/26/09 First ever DestinyMaker Purple Day Kiddie K event Aventura, Fl 4pm
6. 03/28/09 National Epilepsy Walk Washington DC TBA
7. End of April Begin 4th annual North America bike ride (route on web site) TBA
8. New Year's 2nd Annual 24 hour Bikeathon 300 miles
Destinymaker's web site has been viewed from 64 countries. Close to 2000 cities.
Our facebook group now over 1100 members. Total community 4000.
January 2009 Update:
1.14.09
Hello DestinyMaker's,
After biking 301 miles in 24 hours over New Year's Our next event will be
a Valentine Weekend Relay Runnathon. Information on event provided below.
The destinymaker face book group is closing in on it's 900 member. Members come
from Countries and Cities all over the world. Our web site www.destinymaker.org has been visited
by 60 Countries and near 2000 cities.
I will be announcing my route for this summer's 4th annual Cross Country bike ride.
It's time to contact us if you wish for me to ride through your city. Route will be announced right
after runnathon.
| Hosts: |
Fausto Training |
|
|
| Start Time: |
Friday, February 13, 2009 at 8:00am |
| End Time: |
Saturday, February 14, 2009 at 8:00am |
| Location: |
Country Club Circle |
| Street: |
Country Club Drive |
| City/Town: |
Aventura, FL |
|
|
| Phone: |
3057882761 |
| Email: |
Description
Destinymaker's Valentine 24 hour relay runnathon.
For the love of children and families dealing with epilepsy.
Start time 8:00am Feb 13th Finish 8:00am Feb 14th
Looking for runners to run one hour during the 24 hours.
Our goal is to have someone running during the entire 24.
I will run a marathon during event.
For the love of children and families dealing with epilepsy.
Start time 8:00am Feb 13th Finish 8:00am Feb 14th
Looking for runners to run one hour during the 24 hours.
Our goal is to have someone running during the entire 24.
I will run a marathon during event.
In the next few days there will be a sign up link at the destinymaker web site.
Select the hour you wish to run. Run with friends. A $100 entry fee is asked for the hour.
(if you run in group split the costs)
T-shirt/refreshments/food provided
Other sponsorship levels will be announce this week on web site.
Glenn A. Fenster
End of the Year Update:
12.28.08
It's been a great year for the growth of DestinyMaker.
On January 1st 2008 I announced my route for the 3rd annual cross country ride. This ride was to be my longest to date. It also turned out to be the most difficult.
Also in January, Nyle and I were invited by the National Epilepsy Foundation to attend their 2008 Speak out conference. This would be held at the end of March just 4 weeks before I would go to Denver to begin this year's bike ride.
In March, Nyle and I attended the conference and had a great time. The learning experience for Nyle was invaluable. He had to deliver a message to Senate staff and Congresswoman Wasserman-Schultz. He hit a home run. We also had the honor to walk with the Congresswoman who was kind enough to take a photo with Nyle with the Capital building in the back ground.
In the Spring issue of Healthy Living Magazine they did a article on DestinyMaker which was read by millions. This was the largest distribution of any press so far.
Sacha Sackett gives destinymaker permission to use his song "Stuck in the Sunset" for the 2008 destinymaker video.
At the end of April I started my 2008 ride and went west to Moab, Utah south to Phoenix, west to Malibu, North on the PCH crossing the Golden Gate Bridge. I went North into Oregon, Washington. I crossed into Canada just North of Seattle. I then went East when I arrived back into the US at International Falls, Minn. I crossed Michigan. Back into Canada I went to Toronto. Back to America at Niagara Falls. There I went south all the way home to Aventura. 8100 miles in 81 days.
At the end of April I started my 2008 ride and went west to Moab, Utah south to Phoenix, west to Malibu, North on the PCH crossing the Golden Gate Bridge. I went North into Oregon, Washington. I crossed into Canada just North of Seattle. I then went East when I arrived back into the US at International Falls, Minn. I crossed Michigan. Back into Canada I went to Toronto. Back to America at Niagara Falls. There I went south all the way home to Aventura. 8100 miles in 81 days.
In Calgary I received a medal for my efforts in raising awareness.
During physical rest for nearly 2 months I opened the destinymaker facebook page. In a few months I have sent out hundreds of messages and articles on other families and research. I'm proud of the work done here and I will continue the group for years to come.
In September the 2008 DestinyMaker Video was released.
In October I announced I would attempt a 24 hour bike ride raising Epilepsy awareness not by mile but by hour. What am I thinking? Riders in Countries around the world will join biking one hour while I ride 24.
In November I was contacted by the Epilepsy Genome Project to help raise awareness on their research which could unlock the mysteries of Epilepsy. In January I will fly to San Fran and meet their team.
December 1st I started my training program for the 24 hour event. In the 3 weeks of training I feel as if I am ready for the challenge.
In October I announced I would attempt a 24 hour bike ride raising Epilepsy awareness not by mile but by hour. What am I thinking? Riders in Countries around the world will join biking one hour while I ride 24.
In November I was contacted by the Epilepsy Genome Project to help raise awareness on their research which could unlock the mysteries of Epilepsy. In January I will fly to San Fran and meet their team.
December 1st I started my training program for the 24 hour event. In the 3 weeks of training I feel as if I am ready for the challenge.
Mid December Nyle had an operation to fix his right foot and all is deemed a success. Nyle came home and is doing great.
At the end of December I found out that all paperwork to form the destinymaker charity will be submitted in early January of 2009 and pending State approval I will reach the dream of that goal.
At the end of December I found out that all paperwork to form the destinymaker charity will be submitted in early January of 2009 and pending State approval I will reach the dream of that goal.
The destinymaker web site has now recorded hits from 60 Countries and close to 2000 cities.
It's been a great year but there is much still to do and I will triple my efforts to bring attention to the world about Epilepsy.
It's been a great year but there is much still to do and I will triple my efforts to bring attention to the world about Epilepsy.
Go to www.destinymaker.org for more information.
Nyle and I wish you a Happy New Year!!!!!
November Update!
11.15.08
Event Info Host: DestinyMaker www.destinymaker.org
Type: Causes - Fundraiser
Network: Global
Time and Place Start Time: Wednesday, December 31, 2008 at 8:00am
End Time: Thursday, January 1, 2009 at 8:00am
Location: Aventura
Street: Country Club Drive (3 mile circle)
City/Town: Aventura, FL
Contact Info Email: destinymaker4u@aol.com
Type: Causes - Fundraiser
Network: Global
Time and Place Start Time: Wednesday, December 31, 2008 at 8:00am
End Time: Thursday, January 1, 2009 at 8:00am
Location: Aventura
Street: Country Club Drive (3 mile circle)
City/Town: Aventura, FL
Contact Info Email: destinymaker4u@aol.com
DestinyMaker's Glenn A. Fenster will bike ride 24 hours straight (bathroom breaks allowed) raising awareness for the epilepsy community.
#1 Epilepsy Petition... One final push for needed signatures. Using the tag line "I signed will you"
#2 Epilepsy Phenome/Genome Project.... Unlocking the mysteries of epilepsy. Tag Line....needed siblings with epilepsy.
#3 Epilepsy Therapy Project...Advancing New Therapies. Tag line... From Lab to Patient
#4 Money Raised... I will raise money for your favorite Epilepsy organization. Tag Line... Make check payable to them and write in the memo destinymaker 24 hr bikeathon. Send to me and I will forward to each organization all checks received for the event. All monies raised by individuals will go to it's intended recipient. I do reserve the right to acquire sponsors.
OVER 8000 Miles in 80 Days!!
HE MADE IT HOME!!!!
CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
UPDATE : 8.01.08
It is 2 weeks since I arrived home. Nyle and I had a awesome reunion. Then the final mile by police escort I arrived to mile 8057 in 80 days. You can see the video of Nyle and I reunited at www.destinymaker.org I want to thank everyone who helped prepare, organize and see me safely through your communities all over North America. I want to thank everyone who worked behind the scenes to make the 2008 destinymaker bike ride the best yet. This year's finish for me is just another beginning. I will rest. Soon I will announce my plans for 2009.
please go to www.destinymaker.org and write a comment to Nyle and I
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Latest Updates from... Glenn's Journey
July 23rd...
Hello DestinyMaker's, Today's blog sponsored by Fractal, Power Smoothie, Microtel, Nature's Plus, Einstein Bagels. Before I update everyone on the past week my blog will now appear on Wed and Sun starting today. I needed one week to decompress and just get away while I rested and tried to regain some strength back. After the intense focus and concentration for 80 days I just needed time to recapture the motivation and my desire to continue with all that DestinyMaker has become. As I said before this 3rd annual finish is not the end but a new beginning on all of our hopes to find a cure for Epilepsy. Now here is what has transpired since I arrived home. I've been very weak. Tired and just a struggle to do anything. After one week I feel somewhat better. Problem is as I get back to the tennis court to work and play basketball with Nyle everyday I am fighting the exhaustion I feel with other areas I have not used for quite some time. I don't feel as much pain in the area's needed for cycling but now everything else hurts. My son won't let me rest. My finances dictate it's time to work. Nyle and I spent Wed thru Mon doing just about anything and everything together. From basketball twice a day. Eating meals together and just hanging out in the apartment watching TV or wrestling. Just doing nothing together is great. I keep watching the video of my arrival and to see the look on Nyle's face over and over again means so much to me. From his running to me, his look of almost disbelief and the final hug were so special to me. Something I will never forget. Nyle hurts so much while I am away he tends to mask the pain by being quick on phone or short in emails. I guess it's his way of protecting his emotions. I have received more calls this past week from him then the entire trip I just completed. I love my son so much. I love my son more than my ability to explain it. I want to thank all those involved with making DestinyMaker 2008 a success. Many of you spent weeks preparing for my arrival. Made sure I places to stay, food to eat. Courage is found in many places not just in my ability to bike thousands of miles. It was found in the children I met. From Friends I haven't seen in years and their children. To the children I met along the way at restaurants, hotels, malls. From the children I spoke to at schools and to one in a wheelchair I will never forget. Names are meaningless. Action is paramount. I can't remember everyone's name but your actions will never be forgotten. When we help another help other's it's not about the individual it's about all we do to raise the awareness so others fund and fight for our Epilepsy community, Not one person is bigger than that. I want to thank all the well wishers and those who wrote to me with encouraging words. They were needed in my darkest moments of self doubt and absolute exhaustion. I want to thank all who have readd this journal. Many of you come back on a daily basis to check up on what the state of DestinyMaker. I want to thank the citizens of this great planet who have come to the DestinyMaker web site. Citizens of 45 Countries and over 800 cities all over the world. I am not a large organization with small dreams, I am one man with large dreams.
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GLENN & NYLE RE-UNITED!
Thursday, July 17, 2008
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July 16th Day 80 The final mile :)
Hello DestinyMaker's,
Today's blog sponsored by the love and bond between a Father and Son.
I slept little. Couldn't wait to get home. See Nyle. But first there was a 57 mile ride home. Into a strong wind from the south. Once I made the right turn onto US1 you could really feel it. I went through towns such as Boynton Beach, Pompano, Ft. Lauderdale, Hallendale. So many memories lined the streets and reflections from glass. 24 years worth. I would like to start new one's, elsewhere. Once Nyle turns 18 nd he is able to handle aspects of life in college. I will seriously think about relocating.
Finally reaching Aventura. I couldn't stop smiling. I am really home. I didn't really eat and Nyle was at the movies with camp. I went straight for fruit. Blueberries, Mango. I sat outside to eat. Already was getting questions like "Where were you" or hearing statements like haven't seen you in a long time. Well I guess not everyone knew what I wa doing.
I went over to Nyle's camp. He called and said he is on the way over form the movies. I told him I was still some miles away. Our excitement was obvious. I hid when I saw Nyle's bus. I gave video camera to a woman who was standing there. Nyle received a call to his cell from a friend saying "your Dad is there" Nyle didn't believe it but he sure starting running. I gingerly stepped out and the moment that had fueled the last month was at hand. My son and I together. I will never forget how he ran over to me. He held on not wanting to let go. When he did want to let go I couldn't. He looks great. Almost as tall as me. The video will be posted soon. I am home..
Nyle wanted to me shoot baskets. I wanted to go home and sleep. I stayed on the court with him for a few. I needed to get some food. Nyle went back to work. I went to get my favorite dish egg plant parmesan over at Roma's. I missed the way they make it.
I went back to Nyle's camp when a police escort was there to take me to final mile. I couldn't believe it was here. I wanted to go slow. Savor the moment. I sure did. I made it over to Power Smoothie for the final mile. there waiting were friends and family. I was so glad for this to be over. I let out a huge yell with fist in the air.
It is done and I am the same. Finished. There is nothing left of me except my integrity and dignity.
Today's Poem...
Title~The End is Never
The end really startsA beginning of visionto see what's ahead.
He'll Be Home on Wednesday!
07/12
RELEASE – For Immediate Release
DestinyMaker's Glenn A. Fenster of Aventura, FL will be riding into Aventura for his final mile after over 8000 miles by bike at 3pm on Wednesday afternoon.
Where: Power Smoothie in Aventura
20335 Biscayne Blvd
Aventura, Fl
Next to Chuck E Cheese
When: July 16th 3pm
press should arrive @ 2:45
If you want to cover the reunion between my son and I call 305-528-7854
Below is a new report done South of Jacksonville in St. Augustine, Fl
HERO's for EPILEPSY!
1) K.Golden's "Y.G.A.W.B." ~MJIB~Co. PRODUCTIONS' own seizure action dog!!
All of 5 months old, a survivor of surgery and now a true hero in his own right for already doing mouth to mouth rescue of a young girl who could have choked on a piece of fruit when she suddenly went into a grand mal seizure whilist eating. He not only used his tongue to gently remove the fruit for her but he also used his back to help support her weight so she would not hit the floor., all done faster than finding the phone and waiting for the emergency personnel to arrive. B. and ~ABP~ together--saved her.
2) Mr. Glenn Fenster : Destiny Maker
Happy July 4th here in America
Currently in Elizabeth City, NC.
I've surpassed 7000 miles today. Under 1000 to go.
I ache and Suffer from fatigue like never before.
I've surpassed 7000 miles today. Under 1000 to go.
I ache and Suffer from fatigue like never before.
The pain of Missing Nyle hurts the most.
I am also more determined then ever to not only finish
but to help educate, raise awareness, bring down the walls of Stigma,
raise money and most of all inspire those to help fund and find a cure for Epilepsy.
The question now is not if I will try to finish but if I can.
I am also more determined then ever to not only finish
but to help educate, raise awareness, bring down the walls of Stigma,
raise money and most of all inspire those to help fund and find a cure for Epilepsy.
The question now is not if I will try to finish but if I can.
There's not much left except the will to get home.
Below is just one picture of over 2500.
Proudly given his own page on ~MJIB~Co.!!
RELEASE - For Immediate Release
7.05.08
RELEASE – For Immediate Release
Happy July 4th here in America
Currently in Elizabeth City, NC.
I've surpassed 7000 miles today. Under 1000 to go.
I ache and Suffer from fatigue like never before.
I've surpassed 7000 miles today. Under 1000 to go.
I ache and Suffer from fatigue like never before.
The pain of Missing Nyle hurts the most.
I am also more determined then ever to not only finish
but to help educate, raise awareness, bring down the walls of Stigma,
raise money and most of all inspire those to help fund and find a cure for Epilepsy.
The question now is not if I will try to finish but if I can.
I am also more determined then ever to not only finish
but to help educate, raise awareness, bring down the walls of Stigma,
raise money and most of all inspire those to help fund and find a cure for Epilepsy.
The question now is not if I will try to finish but if I can.
There's not much left except the will to get home.
Below is just one picture of over 2500.
Thxs. Glenn for the Promo
Saturday, June 21, 2008
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June 20th, Day 54.
Hello DestinyMaker's,
Today's blog is sponsored by Hotel Super 8 in Marquette, Michigan and MJInnocenceBracelets.
I woke up feeling a bit weak after yesterday. I think it was food poisoning. I did have a good nights sleep. At breakfast the same guys were there wishing me well. Another person there heard the story and was asking questions. He paid for breakfast. His name was Kurt. Thank you to the other guy's and Kurt.
I got on my way in brilliant sunshine. Winds were slight at my back. They did change later in my face. I was riding well. Things were heating up. Today of course is the first day of summer. Hot temps will be the norm from now on. I will just have to deal with it. I bought fruit and stopped to eat when I was hungry. There was lots of road construction that I had to deal with. One truck today came so close I was really scared. I wonder who would have won that battle.
I surprised myself riding after yesterday illness. I was going pretty good and knew I would make Marquette, Michigan. the question was do I go past or take today as a comeback day. Then tomorrow I will do 160 some miles to Sault Ste Marie. Diane and Kathy have made a great team and are really helping me. Fatima in Toronto is trying to arrange things also. I haven't had cell or internet till just now so I am catching up on emails. I called the Days Inn there to inform them I will be there tomorrow. 165 miles away.
I found a Super 8 Hotel in Marquette. The Front desk manager Matt took about 2 minutes to give me a room. I also stopped and was interviewed. After checking in I went over to a local restaurant. But as I was leaving the hotel Matt gave a donation. At the restaurant Joe a person I met also gave one. Amazing! Another day. 100 miles and more awareness. 54 days 5629 miles complete!!
Today's Poem...
Title~Peace
There must be a dayWhere all citizens of EarthLay down their weapons.
Dear Glenn,
6.18.08
This is why you ride...
You ride for single parents like myself who shoulder the most unbelievable accusations with a smile...
You ride for children like my Bubba whose everyday is marred with some form of seizure--whether it be the dreaded grandmal, petit mal, absence , temporal lobe, mult-focal or even the lennox gastaut syndrome that brings innumerable emergency personnel to the door.
You ride for the career I had to forsake to be here for my child.
You ride for when I get called a freak, a weido and who knows what else..
Keep riding, Glenn.
We all love you.
~ABP~
L.McLaughlin
Founder & President of ~MJIB~Co. PRODUCTIONS©
http://www.mjibcoproductions.com >>>STAY TUNED!
Update!! From HEAD OFFICE of ~MJIB~Co. PRODUCTIONS
6.06.08. The parcel is on its way!!
6.05.08 Thanks to Phyllis in Winnipeg, we will soon be shipping a parcel of ~MJINNOCENCE BRACELETS~TM for Glenn and Nyle!!!
6.09.08. Glenn is expected in Winnipeg on Friday.: ) and we are hoping for a picture receiving his very own ~Giving It All I've Got..for You~©!!!
6.16.08. GLENN RECEIVED HIS ~MJINNOCENCE BRACELETS~!
Sunday, June 15, 2008
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June 14th Day 48
Hello DestinyMaker's,
Today's blog sponsored by Jim Gauthier/Rick Therrien Car Dealership and Oakley Alarms.
Just another day. NOT!
After getting myself together which is becoming increasingly difficult each morning I was ready for he ride. I wasn't ready for the emotional aspect to what was about to occur. First up was meeting the current President of the Epilepsy Alliance affiliate in Manitoba, John Saindon. He came to Hotel and got me before 8. We were off to breakfast. A nice chat on the way there. Once there we were greeted by John's wife Eileen and their son's Beavis and Butthead other wise known as Matthew and Landon. Also there was the Wall Family. Diane, Dwayne, Jordan, (broken foot) Hanah and Josh who has Epilepsy. Also there was Wes Uncle of the Wall children and current VP of the Alliance in Manitoba. Good Food and conversation. Laughter and tears. All of us with the common bond of having a child who needs their parents and extended family. Wes gave me money for the journey home. Eileen paid for breakfast and said to me, I am now family. Talk about fighting back the tears.
I want to thank Linda who has not only encouraged me but for taking care of her daughter who has a severe condition. Her company MJInnocenceBracelets Productions made 2 beautiful bracelets. They were given to me a breakfast.
...CONT'D ... on Destinymaker.org.
God bless.
~MJIB~Co. PRODUCTIONS
Destiny Maker's Update as of : 6.09.08
RELEASE – For Immediate Release
Glenn A. Fenster of DestinyMaker has crossed the Rockies of Canada. 43 days on the road, over 4400 miles traveled. He still has 3700 miles to go. He will be away from Nyle for the 3rd straight year on Father's Day. You can view video of Nyle and Glenn's news reports on the main page of the DestinyMaker web site www.destinymaker.org
DestinyMaker web site has been visited by people in 39 countries and over 700 cities around the world.
"I am not a large organization with small dreams, I am one man with large dreams" Fenster says. He was greeted by the Canadian Epilepsy Alliance once into Canada. He is being followed by a RV, Cars, Vans all given or supplied by the Alliance all through Canada. The Canadian Alliance has partnered with DestinyMaker in 2007 and 2008 in helping Glenn raise awareness and money for their Organization. He was interviewed on TV and Fenster was asked how he felt being in Canada and he replied "If last year I felt Canadian this year I feel like Family."
The Canadian Alliance for Epilepsy besides following Glenn hundreds of miles in Canada has arranged Hotel Rooms, Food, Bike Repairs, Energy Bars, Trail Mix. They have held Breakfast's in his honor, arranged speaking engagements at schools talking to children raising awareness, sold T-Shirts to raise money and has done everything but get him to the Moon. If needed they would see to it. Affiliates of the Alliance all over are helping Glenn while he travels through each Province. What a class organization !! As Promoted on MySpace!
| Promoting Epilepsy Research & Awareness:~MJIB~Co. |
| We are proudly promoting Destiny Maker 2008's 8100 mile bicycle trip from Denver to Miami -- the long way. Read the story on our BIKE 4 EPILEPSY page on MJINNOCENCEBRACELETS. COM & on DESTINYMAKER. ORG. God Bless ~MJIB~Co. PRODUCTIONS |
Welcome Home to B.C., Glenn!
5.30.08
Glenn A. Fenster of DestinyMaker has crossed into Canada. 32 days on the road, 3300 miles traveled.
He still has 4800 miles to go. He will be away from Nyle for the 3rd straight year on Father's Day. You can view video of Nyle on the main page of the DestinyMaker web site www.destinymaker.org
DestinyMaker web site has been visited by people in 33 countries and over 600 cities around the world.
"I am not a large organization with small dreams I am one man with large dreams" Fenster says. He was greeted by the Canadian Epilepsy Alliance. He is being followed by a RV given to the Alliance all through British Columbia. The Canadian Alliance has partnered with DestinyMaker in 2007 and 2008 in helping Glenn raise awareness and money for their Organization. He was interviewed today by Global TV. Fenster was asked how he felt being in Canada and he replied "If last year I felt Canadian this year I feel like Family."
He's On His Way to Canada!!
05/23
Glenn Fenster has now traveled over 2300 miles. He has cleared the Colorado Rockies through snow and cold temperatures. He then went into the Canyons of Utah and Arizona.
He crossed the desert in heat and wind.
Fenster then traveled up the Pacific Coast Highway. From Venice Beach to San Francisco crossing the Golden Gate Bridge. Fenster biked along the Northern California Coast with temperatures close to 100.
Into the Redwoods where trees shaded him from the continuing soaring heat. Now crossed into Oregon
the direction will change slightly away from the coast passing through towns of Eugene, Salem and Portland
Glenn's 1st .Year 2006#288. ~GIVING IT ALL I'VE GOT...FOR YOU!~
TM 2008 MJINNOCENCEBRACELETS All Rights Reserved.
This is the Bracelet I made to mark Mr. Fenster's #3 Journey to Raise Money and Awareness for Childhood Epilepsy!
I hope to assist Mr. Fenster in rasing funds through this new ~MJINNOCENCE BRACELETS~.TM
**************************************************************************************************************************************************************************************************************************************
Details to follow.
~ABP~
We Are With You, Glenn!
Glenn A. Fenster
305-788-2761 voicemail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release
305-788-2761 voicemail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release
05/10
DestinyMaker's Glenn Fenster has now cycled over 1000 miles through the Rockies (12,000 high in Elevation, Snow), down into the Canyons of Utah (over 90 degrees), into Monument Valley in Arizona (walked where Dinosaurs walked) and into California (40 mile an hour winds in face). Fenster has been interviewed by local TV and newspapers. You will find one TV report here CBS 2 Palm Springs - Ride to Cure Epilepsy and the others at www.destinymaker.org and click on the In The News link. Currently just outside LA, Fenster today will make his move toward the 2nd leg of his journey raising Epilepsy awareness as he turns toward the North just under 7000 miles to go.
| Epilepsy Groups Support 8,100 Mile Bicycle Ride |
| April 22, 2008 | |
|
On April 28th, 2008 Glenn Fenster of Aventura, Florida will embark on an 8,100 mile bicycle journey from Denver, Colorado to Miami, Florida (the Long Way). Time and Place: From the President's of Epilepsy Foundations in America and Canada In Canada, my colleagues and I are preparing to welcome Mr. Fenster, and do what we can to make his journey easier. For the most part, our organizations are small, consisting of as few as one person to a maximum of four to five people. We are looking forward to welcoming Mr. Fenster into our communities, cheering him on, being inspired, supporting, and promoting his efforts to raise the profile of epilepsy. I am more than willing to discuss this ride with a colleague or a potential media member and can be reached at (403) 230-2764 if I can provide any insight or information. Mr. Fenster deserves no less than all the support we are able to provide! More Press Releases Here: http://www.mmdnewswire.com/bicycle-journey-for-epilepsy-3245.html http://www.mmdnewswire.com/denver-deputy-mayor-bill-vidal-3250.html Glenn A. Fenster
SOURCE: News Wire Underground / ~MJIB~Co. PRODUCTIONS
|
Welcome Home to ~MJIB~Co. Glenn & Nyle
Epilepsy Is Our Cause..it Empowers Us...to Find the Cure.
Destiny Maker 4 U PRESS RELEASES:
4.26.08 Glenn is On His Way!!
Glenn A. Fenster
305-788-2761 voicemail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release
305-788-2761 voicemail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release
FIRST MILE EVENT
Time and Place
Date: Monday, April 28, 2008
Time: 8:00 am - 8:30 am
Location: Hilton Garden Inn
Street: 1400 Welton Street, Denver, Colorado, USA 80202
City/Town: Denver
Date: Monday, April 28, 2008
Time: 8:00 am - 8:30 am
Location: Hilton Garden Inn
Street: 1400 Welton Street, Denver, Colorado, USA 80202
City/Town: Denver
04/25 Glenn arrives in Denver. Checks into the Hilton Garden Inn. A sponsor of DestinyMaker. Glenn meets with State Director Renny Fagen and discusses Nyle's life with Epilepsy, the ride and current bills coming up for vote and asking for continued support by Senator Ken Salazar.
04/18
DestinyMaker announces today that Felt Bikes and CityBikes, Aventura Florida Felt Dealer
for the third year in a row has partnered with cyclist Glenn Fenster.
In 2006 Fenster used the Felt 90 (red) riding over 4000 miles.
In 2007 Fenster used the Felt 80 (yellow) riding over 6000 miles.
This year Fenster will use the Felt 75 (black) attempting to ride over 8000.
for the third year in a row has partnered with cyclist Glenn Fenster.
In 2006 Fenster used the Felt 90 (red) riding over 4000 miles.
In 2007 Fenster used the Felt 80 (yellow) riding over 6000 miles.
This year Fenster will use the Felt 75 (black) attempting to ride over 8000.
The F75 is our most affordable bicycle featuring a full carbon fiber fork and a frame with a carbon fiber wishbone seatstay for improved vibration damping and comfort. The double-butted aluminum frame tubing makes this an unusually light and comfortable frame given its price. The parts spec mixes Shimano 105 and Ultegra parts for the perfect blend of affordability and race-ready performance. Riders looking to tackle their first century need look no further. Felt Exclusive 7005 Superlite custom-butted aluminum frame with carbon fiber wishbone seatstays. Externally relieved integrated head tube, machined bottom bracket, forged dropouts with replaceable hanger and internal brake cable routing. Felt Bicycles 2008 (picture of bike)
Felt despite their broad offering of product, their mission is quite simple:
To design, develop, and deliver the best bicycles in the world. Period.
Felt despite their broad offering of product, their mission is quite simple:
To design, develop, and deliver the best bicycles in the world. Period.
CityBikes a proud supporter of DestinyMaker serves hundreds of local riders
and national Cycling Teams. Their knowledgeable staff are friendly and welcome
all levels of riders from the child who is just beginning or to the most serious of riders.
and national Cycling Teams. Their knowledgeable staff are friendly and welcome
all levels of riders from the child who is just beginning or to the most serious of riders.
Glenn A. Fenster
305-788-2761 voice mail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release
4.15.08
NEWS RELEASE – For Immediate Release
FIRST MILE EVENT
Time and Place
Date: Monday, April 28, 2008
Time: 8:00 am - 8:30 am
Location: Hilton Garden Inn
Street: 1400 Welton Street, Denver, Colorado, USA 80202
City/Town: Denver
Destinymaker announces Denver's Deputy Mayor Bill Vidal will attend, speak
and ride with Glenn one mile representing the City of Denver and it's citizens.
Glenn heard today just how excited the Deputy Mayor is about joining him
Glenn heard today just how excited the Deputy Mayor is about joining him
for the symbolic first mile of 8100.
From Denver to Miami (The Long Way) - One Man’s 8100 Mile Bicycle Journey for Epilepsy
On April 28th, 2008 Glenn Fenster of Aventura, Florida will embark on a 8100 mile bicycle journey from Denver, Colorado to Miami, Florida (the Long Way).
On April 28th, 2008 Glenn Fenster of Aventura, Florida will embark on a 8100 mile bicycle journey from Denver, Colorado to Miami, Florida (the Long Way).
Denver
Phoenix
LA
SF
Seattle
Calgary
Toronto
NY
Philadelphia
Atlanta
Orlando
Miami
His inspiration and reason for this ambitious undertaking is his 14 year-old son, Nyle, who has suffered from acute epilepsy since he was just two years old. Glenn is riding to show his son that no matter what the disability, everyone has the capacity to reach for their dreams. He does not ride just for his son, but for other kids and adults living with epilepsy.
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, supporting the Epilepsy Foundation of Florida. Last year’s ride from Alaska supported Epilepsy services and programs in America and Canada, added another 2500 miles to his journey, along with the challenges of the ‘northern climate’, which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, “This upcoming 8100 mile trip pales in comparison to the courage my son and others exhibit each day”. "My son Nyle was diagnosed with Epilepsy when he was two years old. Since then, he has had hundreds of seizures. He has them everyday. They occur when he sleeps. Five years ago on the tennis court he went for a shot and a seizure occurred. He fell to the ground hard. By the time I got to him running as fast as I could the seizure had ended. I gave out my hand to help him up. He refused any help. I asked him, "How do you keep getting up"? He answered, "Dad, I've never seen you stay down." I decided right there I would do something that would raise the awareness of all who suffer from seizures the courage my son shows. Days later I had a plan. I decided to bike from Seattle to Miami (47 days) 4036 miles completed in 2006. In 2007 I biked (65 days) 6200 miles from Alaska to Miami. This year I will bike 8100 miles. One might think the most difficult challenge would be the training. Day after day, riding mile after mile, cycling in rain, wind, heat, darkness. One might think it would be the terrain. Unable to practice in the mountains, they are a struggle to climb. One might think it's the 50 pounds extra of supplies I have to carry. One might think it would be the exhaustion I feel. One might think it is the loneliness of the asphalt. But no, the most difficult challenge for me is being away from my son. It is my goal by 2010 to have raised $1,000.000. I want to send children like my son to Epilepsy supported summer camps through out America and Canada. I want to break down the walls of stigma associated with Epilepsy. I do this to show everyone that no matter what disability of the mind or body, anything can be accomplished. That my son is like you and I. Epilepsy is what he has, Not who he is."
From the President's of Epilepsy Foundations in America and Canada
We commend Glenn Fenster on the start of his 8100-mile bike ride to raise epilepsy awareness. There are continuing myths and misinformation about epilepsy still pervading the media and the mind of the public—including the totally incorrect idea that you should put something in the mouth of a person having a seizure. We applaud Glenn’s efforts to spread the truth about epilepsy. The stigma facing people with epilepsy around the world is one of the greatest enemies they face, and the stigma must end.
Eric Hargis, President of National Epilepsy Foundation
Eric Hargis, President of National Epilepsy Foundation
On behalf of the Canadian Epilepsy Alliance/ Alliance Canadienne del l’Épilepsie, we extend our best wishes to Destiny Maker Cyclist, Glenn Fenster, for a safe journey. Glenn, you are doing much to unite those living with epilepsy, increase awareness, and raise funds throughout North America. Your efforts are to be commended. Epilepsy organizations will be on hand to greet and support your amazing journey in each of the Canadian cities you visit. You are doing much to bring epilepsy… ‘out of the shadows’ and into the light. You carry with you the hopes and dreams of people throughout North America whose lives are touched by epilepsy.
Thank you and safe travels!
Catherine Sauerwein, President
Montreal, Canada
Canadian Epilepsy Alliance/ Alliance Canadienne de l’Épilepsie
EPILEPSY ASSOCIATION OF CALGARY
I am writing this letter to provide enthusiastic endorsement for the 2008 Destiny Maker Ride
for Epilepsy. This is my second time being involved with Glenn Fenster's ride, and I can
personally attest to the unbelievable courage, spirit, and determination of Mr. Fenster in raising
both awareness and funds for those living with epilepsy throughout North America, if not
throughout out the world. He gives life to the concept, "The Power of One".
Having worked in an epilepsy organization for the past 21 years, I can say without
question that I have never seen any effort that equals that of Mr. Fenster. I have
personally witnessed and experienced the impact he has had on parents, children, and adults living
with epilepsy - and to say that it is "amazing" is an understatement. He has inspired
people of all ages and from all walks of life to believe in themselves and believe that a world free of
stigma and prejudice is possible, and, that they can help make a difference. He has reduced
geographic boundaries and has helped unite people from all over North America. From a child
struggling alone in a small town, to a parent coping with epilepsy in a large city, I am proud to say
that I have seen the impact Mr. Fenster has made in their lives.
Furthermore, as someone who is passionate and committed to my work in creating awareness and
reducing the stigma so commonly associated with epilepsy, Mr. Fenster has also had an enormous
impact on me personally - providing a renewed sense of hope and inspiration that can get so easily
lost in the day to day struggle of never having enough hours enough people, or enough resources to
accomplish all that still needs to be done. However, the Destiny Maker Cycle for Epilepsy is
a project that promotes such positive energy - that the extra work associated with
welcoming this North American Hero is not nearly the burden one might think - and it pales in
comparison to the enormous journey Mr. Fenster will undertake and the personal sacrifices on his
part to make a difference for his son and for people throughout North America who live with
epilepsy. Now that's worth celebrating!!!
In Canada, my colleagues and I are preparing to welcome Mr. Fenster, and do what we can to make
his journey easier. For the most part, our organizations are small, consisting of as few as one
person to a maximum of four to five people. We are looking forward to welcoming Mr. Fenster into
our communities, cheering him on, being inspired, supporting, and promoting his efforts to raise
the profile of epilepsy. I am more than willing to discuss this ride with a colleague or a potential
media member and can be reached at (403) 230-2764 if I can provide any insight or information.
Mr. Fenster deserves no less than all the support we are able to provide!
for Epilepsy. This is my second time being involved with Glenn Fenster's ride, and I can
personally attest to the unbelievable courage, spirit, and determination of Mr. Fenster in raising
both awareness and funds for those living with epilepsy throughout North America, if not
throughout out the world. He gives life to the concept, "The Power of One".
Having worked in an epilepsy organization for the past 21 years, I can say without
question that I have never seen any effort that equals that of Mr. Fenster. I have
personally witnessed and experienced the impact he has had on parents, children, and adults living
with epilepsy - and to say that it is "amazing" is an understatement. He has inspired
people of all ages and from all walks of life to believe in themselves and believe that a world free of
stigma and prejudice is possible, and, that they can help make a difference. He has reduced
geographic boundaries and has helped unite people from all over North America. From a child
struggling alone in a small town, to a parent coping with epilepsy in a large city, I am proud to say
that I have seen the impact Mr. Fenster has made in their lives.
Furthermore, as someone who is passionate and committed to my work in creating awareness and
reducing the stigma so commonly associated with epilepsy, Mr. Fenster has also had an enormous
impact on me personally - providing a renewed sense of hope and inspiration that can get so easily
lost in the day to day struggle of never having enough hours enough people, or enough resources to
accomplish all that still needs to be done. However, the Destiny Maker Cycle for Epilepsy is
a project that promotes such positive energy - that the extra work associated with
welcoming this North American Hero is not nearly the burden one might think - and it pales in
comparison to the enormous journey Mr. Fenster will undertake and the personal sacrifices on his
part to make a difference for his son and for people throughout North America who live with
epilepsy. Now that's worth celebrating!!!
In Canada, my colleagues and I are preparing to welcome Mr. Fenster, and do what we can to make
his journey easier. For the most part, our organizations are small, consisting of as few as one
person to a maximum of four to five people. We are looking forward to welcoming Mr. Fenster into
our communities, cheering him on, being inspired, supporting, and promoting his efforts to raise
the profile of epilepsy. I am more than willing to discuss this ride with a colleague or a potential
media member and can be reached at (403) 230-2764 if I can provide any insight or information.
Mr. Fenster deserves no less than all the support we are able to provide!
Kathy Fyfe Executive Director
EPILEPSY ASSOCIATION OF CALGARY
Thank you for helping me raise Epilepsy awareness.
04/11/2008
FIRST MILE EVENT
| Date: |
Monday, April 28, 2008 |
| Time: |
8:00 am - 8:30 am |
| Location: |
Hilton Garden Inn |
| Street: |
1400 Welton Street, Denver, Colorado, USA 80202 |
| City/Town: |
Denver |
04/11
We commend Glenn Fenster on the start of his 8100-mile bike ride to raise epilepsy awareness. There are continuing myths and misinformation about epilepsy still pervading the media and the mind of the public—including the totally incorrect idea that you should put something in the mouth of a person having a seizure. We applaud Glenn’s efforts to spread the truth about epilepsy. The stigma facing people with epilepsy around the world is one of the greatest enemies they face, and the stigma must end.
Eric Hargis, President of National Epilepsy Foundation
* I've been informed by Congressman Perlmutter that a scheduling conflict has incurred and the Interior Secretary of the United States will be arriving the morning of April 28th and he will be unable to attend.
DestinyMaker announces a product sponsorship with Natures Plus, the world leader of advance energy supplements. Glenn who has been using products for a decade now is pleased to know Nature's Plus will be partnering for the 2008 DestinyMaker bike ride raising Epilepsy awareness. Glenn will use the their Source of Life Vegetarian Energy and Oxy Nectar AntiOxident.
04/01/2008
DestinyMaker founder Glenn A. Fenster is excited to announce today Congressman Ed Perlmutter of Colorado will be biking the first mile with Glenn April 28th, 2008. Congressman Perlmutter will not just ride the first mile but will tandem with Glenn for 20 miles or so. Congressman Perlmutter knows all to well about Epilepsy. His daughter suffers from the condition.
03/30/2008
The National Epilepsy Foundation incoming Board of Directors President Joyce Bender who also Hosts an Internet radio show on disabilities will have Glenn as a guest on her show. This one hour taped broadcast will air 2-3pm on April 15th, 2008.
03/20/2008
DestinyMaker founder Glenn A. Fenster is excited to announce today a product sponsorship from CytoMax for the final phase of training and the 2008 DestinyMaker 8100 mile bike ride raising awareness for epilepsy. CytoMax featuring the patented energy source Alpha-L-Polyactate. CytoMax will supply Fenster enough product for final phase of training and everyday on his ride.
03/14/2008
The National Epilepsy Foundation named Nyle Fenster of Aventura their new spokesperson on Friday. Nyle, 14, is scheduled to fly April 1 to Washington, D.C., to meet with congressional leaders. He will lobby for epilepsy public health programs and research toward a cure. Nyle is one of 50 young people with epilepsy participating in Kids Speak Up!, a national program coordinated by the Epilepsy Foundation with support from Abbott.The program rallies young ambassadors with epilepsy between the ages of 7 and 16 to advocate for the more than three million Americans living with the condition. ''He is an ideal candidate because of his desire to achieve his goals despite his challenges. Nyle's courage is an inspiration to us all,'' said Eric R. Hargis, president and CEO of the foundation.
3/9
DestinyMaker announces dance4epilepsy.
DestinyMaker and the Dance Community are uniting to raise money for scholarships and Epilepsy awareness throughout North America. DestinyMaker will offer scholarships to children either in dance or who want to be in dance that have Epilepsy. Money will also support other Dance Organizations that promote and support children and use Dance as a way of therapy. Go to www.destinymaker.org to learn more.
3/08
Destinymaker announces it's theme song for 2008
DestinyMaker announces today a partnership with recording artist Sacha Sacket who has given DestinyMaker permission to use his song "Stuck in the Sunset" as our theme song for our 2008 3rd annual bike ride and DestinyMaker Video. Sackett writes about biking some miles with Glenn " Definitely sounds awesome" and in his reply to use of his song "go for it".
2/25
DestinyMaker has expanded it's goal of raising $250,000 by 2010 to $1,000,000.00.
DestinyMaker has expanded it's goal of raising $250,000 by 2010 to $1,000,000.00.
DestinyMaker's founder Glenn A. Fenster writes " I am limiting the possibilities by
a goal of $250,000. The challenge seemed with in reach which in turn offered something attainable."
Fenster goes on to say " Now I ask of myself to quadruple my effort while I ask the public
to match in funds". I am my best when something seems impossible to accomplish.
2/15
The Spring Issue of Medizine's Healthy Living Magazine has published an article on Glenn Fenster.
The two page spread quotes Fenster saying "I am a man on a mission". You can find the magazine at Pharmacies and Doctor's offices all over America. Distribution 3.5 million, Readership 16 million.
The two page spread quotes Fenster saying "I am a man on a mission". You can find the magazine at Pharmacies and Doctor's offices all over America. Distribution 3.5 million, Readership 16 million.
2/03
Glenn Fenster's son Nyle was selected out of thousands by the National Epilepsy Foundation to be Florida's teenager to attend the Speak Out Speak Up Conference in Washington DC. One child from each of the 50 States is selected.
From Denver to Miami (The Long Way) - One Man’s 8100 Mile Bicycle Journey for Epilepsy
On April 28th, 2008 Glenn Fenster of Aventura, Florida will embark on a 8100 mile bicycle journey from Denver, Colorado to Miami, Florida (the Long Way).
Denver
Phoenix
LA
SF
Seattle
Vancouver
Calgary
Toronto
NY
Philadelphia
Atlanta
Orlando
Miami
Denver
Phoenix
LA
SF
Seattle
Vancouver
Calgary
Toronto
NY
Philadelphia
Atlanta
Orlando
Miami
His inspiration and reason for this ambitious undertaking is his 14 year-old son, Nyle, who has suffered from acute epilepsy since he was just two years old. Glenn is riding to show his son that no matter what the disability, everyone has the capacity to reach for their dreams. He does not ride just for his son, but for other kids and adults living with epilepsy.
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, supporting the Epilepsy Foundation of Florida. Last year’s ride from Alaska supported Epilepsy services and programs in America and Canada, added another 2500 miles to his journey, along with the challenges of the ‘northern climate’, which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, “This trip pales in comparison to the courage my son and others exhibit each day”.
"My son Nyle was diagnosed with Epilepsy when he was two years old. Since then, he has had hundreds of seizures. He has them everyday. They occur when he sleeps. Five years ago on the tennis court he went for a shot and a seizure occurred. He fell to the ground hard. By the time I got to him running as fast as I could the seizure had ended. I gave out my hand to help him up. He refused any help. I asked him, "How do you keep getting up"? He answered, "Dad, I've never seen you stay down." I decided right there I would do something that would raise the awareness of all who suffer from seizures the courage my son shows. Days later I had a plan. I decided to bike from Seattle to Miami (47 days) 4036 miles completed in 2006. In 2007 I biked (65 days) 6200 miles from Alaska to Miami. This year I will bike 8100 miles. One might think the most difficult challenge would be the training. Day after day, riding mile after mile, cycling in rain, wind, heat, darkness. One might think it would be the terrain. Unable to practice in the mountains, they are a struggle to climb. One might think it's the 50 pounds extra of supplies I have to carry. One might think it would be the exhaustion I feel. One might think it is the loneliness of the asphalt. But no, the most difficult challenge for me is being away from my son. It is my goal by 2010 to have raised $250,000. I want to send children like my son to Epilepsy supported summer camps through out America and Canada. I want to break down the walls of stigma associated with Epilepsy. I do this to show everyone that no matter what disability of the mind or body, anything can be accomplished. That my son is like you and I. Epilepsy is what he has, Not who he is."
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, supporting the Epilepsy Foundation of Florida. Last year’s ride from Alaska supported Epilepsy services and programs in America and Canada, added another 2500 miles to his journey, along with the challenges of the ‘northern climate’, which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, “This trip pales in comparison to the courage my son and others exhibit each day”.
"My son Nyle was diagnosed with Epilepsy when he was two years old. Since then, he has had hundreds of seizures. He has them everyday. They occur when he sleeps. Five years ago on the tennis court he went for a shot and a seizure occurred. He fell to the ground hard. By the time I got to him running as fast as I could the seizure had ended. I gave out my hand to help him up. He refused any help. I asked him, "How do you keep getting up"? He answered, "Dad, I've never seen you stay down." I decided right there I would do something that would raise the awareness of all who suffer from seizures the courage my son shows. Days later I had a plan. I decided to bike from Seattle to Miami (47 days) 4036 miles completed in 2006. In 2007 I biked (65 days) 6200 miles from Alaska to Miami. This year I will bike 8100 miles. One might think the most difficult challenge would be the training. Day after day, riding mile after mile, cycling in rain, wind, heat, darkness. One might think it would be the terrain. Unable to practice in the mountains, they are a struggle to climb. One might think it's the 50 pounds extra of supplies I have to carry. One might think it would be the exhaustion I feel. One might think it is the loneliness of the asphalt. But no, the most difficult challenge for me is being away from my son. It is my goal by 2010 to have raised $250,000. I want to send children like my son to Epilepsy supported summer camps through out America and Canada. I want to break down the walls of stigma associated with Epilepsy. I do this to show everyone that no matter what disability of the mind or body, anything can be accomplished. That my son is like you and I. Epilepsy is what he has, Not who he is."
This is a email to Larry King from Epilepsy Alliance of Canada.
You interview many politicians, entertainers, etc. but I know of an amazing "everyday hero", who has been working unbelievably hard to raise awareness and funds for epilepsy because his son suffers from it. He works just below the radar, but has made a GARGANTUAN effort to make a difference - he totally encapsulates the concept "The Power of One"
I'd like to see you interview Glenn Fenster (and maybe his son Nyle if he were up to it)- the amazing father who is making his third long distance bike trip in the US and Canada to raise awareness and funds for epilepsy. His 14 year old son Nyle has epilepsy - and this man has biked thousands of miles to raise awareness, funds, and hope for sufferers throughout North America. This is an amazing and inspiring story - Glenn and Nyle need our support! This year's trek will total about 8100 miles in about 64 days.
I've attached a news release I've prepared for when he arrives in Canada - which outlines his story. I had the pleasure of meeting and working with Glenn last year for the Canadian leg of his journey. He is the real deal. I've also attached a word document which contains a few photos from his time in Canada.
I've worked in the epilepsy community for 21 years and I have never met anyone like Glenn - who is working so hard to make a difference...he is inspiring hope in people throughout North America as never before. However - as epilepsy remains a very stigmatizing condition, he has not received the National/North American profile that he so richly deserves, and which would help unite those affected by epilepsy, and raise general understanding to unprecedented levels. In Canada, epilepsy organizations are enthusiastically supporting Glenn. We will do everything in our power to support, welcome, and celebrate his spirit and achievement. People are excited to see him.
Please consider supporting Glenn and Nyle and this amazing journey! Have him (them...) on your show!!! I can't think of anyone with more heart! (as big as three universes!) He deserves a hero's welcome, a hero's send off - and some kind of medal for all his is doing!
Kathy Fyfe, Calgary, Alberta CANADA
Epilepsy Association of Calgary
Canadian Epilepsy Alliance
Sponsorship/Donation are available.
Can you help?
Thank you,
Glenn A. Fenster
NEWS RELEASE – For Immediate Release
04/03/2008
FIRST MILE EVENT
| Date: |
Monday, April 28, 2008 |
| Time: |
8:00 am - 8:30 am |
| Location: |
Hilton Garden Inn |
| Street: |
1400 Welton Street, Denver, Colorado, USA 80202 |
| City/Town: |
Denver |
* I've been informed by Congressman Perlmutter that a scheduling conflict has incurred and the Interior Secretary of the United States will be arriving the morning of April 28th and he will be unable to attend.
NEWS RELEASE – For Immediate Release
04/01/2008
DestinyMaker founder Glenn A. Fenster is excited to announce today Congressman Ed Perlmutter of Colorado will be biking the first mile with Glenn April 28th, 2008. Congressman Perlmutter will not just ride the first mile but will tandem with Glenn for 20 miles or so. Congressman Perlmutter knows all to well about Epilepsy. His daughter suffers from the condition.
03/30/2008
The National Epilepsy Foundation incoming Board of Directors President Joyce Bender who also Hosts an Internet radio show on disabilities will have Glenn as a guest on her show. This one hour taped broadcast will air 2-3pm on April 15th, 2008.
On Fri, Mar 14, 2008 at 11:18 AM, <DestinyMaker4U@aol.com> wrote:
Glenn A. Fenster
305-788-2761 voice mail
305-528-7854 cell
DestinyMaker4u@aol.com
NEWS RELEASE – For Immediate Release 3/9DestinyMaker announces dance4epilepsy.DestinyMaker and the Dance Community are uniting to raise money for scholarships and Epilepsy awareness throughout North America. DestinyMaker will offer scholarships to children either in dance or who want to be in dance that have Epilepsy. Money will also support other Dance Organizations that promote and support children and use Dance as a way of therapy. Go to www.destinymaker.org to learn more.3/08Destinymaker announces it's theme song for 2008DestinyMaker announces today a partnership with recording artist Sacha Sacket who has given DestinyMaker permission to use his song "Stuck in the Sunset" as our theme song for our 2008 3rd annual bike ride and DestinyMaker Video. Sackett writes about biking some miles with Glenn " Definitely sounds awesome" and in his reply to use of his song "go for it".2/25
DestinyMaker has expanded it's goal of raising $250,000 by 2010 to $1,000,000.00.DestinyMaker's founder Glenn A. Fenster writes " I am limiting the possibilities bya goal of $250,000. The challenge seemed with in reach which in turn offered something attainable."Fenster goes on to say " Now I ask of myself to quadruple my effort while I ask the publicto match in funds". I am my best when something seems impossible to accomplish.2/15The Spring Issue of Medizine's Healthy Living Magazine has published an article on Glenn Fenster.
The two page spread quotes Fenster saying "I am a man on a mission". You can find the magazine at Pharmacies and Doctor's offices all over America. Distribution 3.5 million, Readership 16 million.
2/03
Glenn Fenster's son Nyle was selected out of thousands by the National Epilepsy Foundation to be Florida's teenager to attend the Speak Out Speak Up Conference in Washington DC. One child from each of the 50 States is selected.
From Denver to Miami (The Long Way) - One Man's 8100 Mile Bicycle Journey for Epilepsy
On April 28th, 2008 Glenn Fenster of Aventura, Florida will embark on a 8100 mile bicycle journey from Denver, Colorado to Miami, Florida (the Long Way).
Denver
Phoenix
LA
SF
Seattle
Vancouver
Calgary
Toronto
NY
Philadelphia
Atlanta
Orlando
MiamiHis inspiration and reason for this ambitious undertaking is his 14 year-old son, Nyle, who has suffered from acute epilepsy since he was just two years old. Glenn is riding to show his son that no matter what the disability, everyone has the capacity to reach for their dreams. He does not ride just for his son, but for other kids and adults living with epilepsy.
In 2006 Glenn biked 4036 miles from Seattle Washington to Miami Florida, to promote epilepsy awareness, supporting the Epilepsy Foundation of Florida. Last year's ride from Alaska supported Epilepsy services and programs in America and Canada, added another 2500 miles to his journey, along with the challenges of the 'northern climate', which can be unpredictable and definitely much colder then what he experienced previously. According to Mr. Fenster, "This trip pales in comparison to the courage my son and others exhibit each day".
"My son Nyle was diagnosed with Epilepsy when he was two years old. Since then, he has had hundreds of seizures. He has them everyday. They occur when he sleeps. Five years ago on the tennis court he went for a shot and a seizure occurred. He fell to the ground hard. By the time I got to him running as fast as I could the seizure had ended. I gave out my hand to help him up. He refused any help. I asked him, "How do you keep getting up"? He answered, "Dad, I've never seen you stay down." I decided right there I would do something that would raise the awareness of all who suffer from seizures the courage my son shows. Days later I had a plan. I decided to bike from Seattle to Miami (47 days) 4036 miles completed in 2006. In 2007 I biked (65 days) 6200 miles from Alaska to Miami. This year I will bike 8100 miles. One might think the most difficult challenge would be the training. Day after day, riding mile after mile, cycling in rain, wind, heat, darkness. One might think it would be the terrain. Unable to practice in the mountains, they are a struggle to climb. One might think it's the 50 pounds extra of supplies I have to carry. One might think it would be the exhaustion I feel. One might think it is the loneliness of the asphalt. But no, the most difficult challenge for me is being away from my son. It is my goal by 2010 to have raised $250,000. I want to send children like my son to Epilepsy supported summer camps through out America and Canada. I want to break down the walls of stigma associated with Epilepsy. I do this to show everyone that no matter what disability of the mind or body, anything can be accomplished. That my son is like you and I. Epilepsy is what he has, Not who he is."This is a email to Larry King from Epilepsy Alliance of Canada.You interview many politicians, entertainers, etc. but I know of an amazing "everyday hero", who has been working unbelievably hard to raise awareness and funds for epilepsy because his son suffers from it. He works just below the radar, but has made a GARGANTUAN effort to make a difference - he totally encapsulates the concept "The Power of One"I'd like to see you interview Glenn Fenster (and maybe his son Nyle if he were up to it)- the amazing father who is making his third long distance bike trip in the US and Canada to raise awareness and funds for epilepsy. His 14 year old son Nyle has epilepsy - and this man has biked thousands of miles to raise awareness, funds, and hope for sufferers throughout North America. This is an amazing and inspiring story - Glenn and Nyle need our support! This year's trek will total about 8100 miles in about 64 days.I've attached a news release I've prepared for when he arrives in Canada - which outlines his story. I had the pleasure of meeting and working with Glenn last year for the Canadian leg of his journey. He is the real deal. I've also attached a word document which contains a few photos from his time in Canada.I've worked in the epilepsy community for 21 years and I have never met anyone like Glenn - who is working so hard to make a difference...he is inspiring hope in people throughout North America as never before. However - as epilepsy remains a very stigmatizing condition, he has not received the National/North American profile that he so richly deserves, and which would help unite those affected by epilepsy, and raise general understanding to unprecedented levels. In Canada, epilepsy organizations are enthusiastically supporting Glenn. We will do everything in our power to support, welcome, and celebrate his spirit and achievement. People are excited to see him.Please consider supporting Glenn and Nyle and this amazing journey! Have him (them...) on your show!!! I can't think of anyone with more heart! (as big as three universes!) He deserves a hero's welcome, a hero's send off - and some kind of medal for all his is doing!Kathy Fyfe, Calgary, Alberta CANADAEpilepsy Association of CalgaryCanadian Epilepsy AllianceSponsorship/Donation are available.Can you help.Thank you!!!
Glenn A. Fenster
03/20/2008
DestinyMaker founder Glenn A. Fenster is excited to announce today a product sponsorship from CytoMax for the final phase of training and the 2008 DestinyMaker 8100 mile bike ride raising awareness for epilepsy. CytoMax featuring the patented energy source Alpha-L-Polyactate. CytoMax will supply Fenster enough product for final phase of training and everyday on his ride.
03/14/2008
The National Epilepsy Foundation named Nyle Fenster of Aventura their new spokesperson on Friday. Nyle, 14, is scheduled to fly April 1 to Washington, D.C., to meet with congressional leaders. He will lobby for epilepsy public health programs and research toward a cure. Nyle is one of 50 young people with epilepsy participating in Kids Speak Up!, a national program coordinated by the Epilepsy Foundation with support from Abbott.The program rallies young ambassadors with epilepsy between the ages of 7 and 16 to advocate for the more than three million Americans living with the condition. ''He is an ideal candidate because of his desire to achieve his goals despite his challenges. Nyle's courage is an inspiration to us all,'' said Eric R. Hargis, president and CEO of the foundation.
Parent's Outstanding Efforts to Stop Epilepsy!!
~MJIB~Co. PRODUCTIONS's Founder & President has teamed up with the super powerhouse of Epilepsy Research Supporter, Mr. Glenn A. Fenster of Florida, USA to bring the crucial need for a Cure for Epilepsy to everyone's eyes.
Like Glenn, I also wage war on a daily basis to help my own child manage her notorious seizures that have controlled her life and her family's life ALL her life.
And this is Glenn's site: http://www.destinymakerevents.com/Glenn/index.html
~ABP~
3.23.08
My Caregiver Award 2004
Richmond's Linda _wants what every mother wants for her child - a happy life, filled with fun, friends and good health. But temporal epilepsy with Lennox-Gaustaut tendencies means her 16-year-old daughter, B., has the mental capacity of a three to four-year-old child and is terrified without her mother holding her hand.
For her selfless devotion to her daughter, Linda _ recently was honoured as the recipient of the _ Canada Caregiver Award. The award of $1,000 recognizes nonprofessional caregivers who provide ongoing care and support to loved ones with an illness or disability.
Linda _ is certainly part of a large group of unsung heroes ...
More On: ~EPILEPSY CREATIONS~ (Sorry by Special Request Invite Only).
